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Browse by month
2007: August / July / June / May / April / March / February / January / 2006: December / November / October / All months together |
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September 15... We are back!! Summer here in Rome was hot, still very hot even if everyone think that summer is over. Ja doing better and better and we plan to come back home as soon is possible and continue Ja's treatment in Vancouver. We are looking for transportation just now, but we trying to find a private company and small plane, and avoid public airport and thousand of peoples around Ja, because her immune system still low and we must have allots of precaution respect at Ja's health. If anyone that read this update, have a friend, a company, a name or any idea where we must go or talk, don't hesitate to e-mail or phone us. The sooner,... the better... Thank you to all the friends, family and helpers that have been with us all this time, and still there for the time we still need to go.
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August 20,21... The Rome update is on "holidays" from now to September 15. Family, Friends and supporters, be patient... :)
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August 17,18,19... The Rome update still on holydays, "The August Italian wave"...:)
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August 16... The Rome update on holydays...:)
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August 15... Rome Holyday
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August 14... Another round of today roses... Pictures click here..
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August 13... Over...
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August 12... Over...
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August 11... Over...
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August 10... Finally!!!!!! Today rain in Rome for 20 minutes after 93 days. For somebody from Vancouver where rain is the normal happen year round, is very surprising see the rain after 3 month... :)
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August 9... Over...
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August 8... Over...
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August 7... Italy is close... :) Every store close for holidays, 2 weeks, 3 weeks, 4 weeks, and everyone go to some place... they really respect their holydays and nothing can be more important in August... The city looks empty, with allots of tourist of course.... The Rome update are on holydays too... No news, good news... Few more pictures from the last full moon on July ... Pictures click here..
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August 6... Over...
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August 5... Over...
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August 4... Over...
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August 3... Well this month can be the same or not for Ja, ups and downs... We don't really know in the stage we are just now. So I guess we going to let Ja in peace, except some exceptional news, and I going to dedicate the page to have some fun. For example... last full moon take few pictures, then take few more moving the camera and final add some photoshop for fun and here is the result... Pictures click here..
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August 2... I still don't have time for the updates. During this period, Ja will remaining the same from the last update...:)
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August 1st... Sorry run out time for the updates.
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July 31... day after Full moon.... and the moon still full and beautiful like yesterdays We arrive at the end of another month. So many, so long and so slow everything. Ja is happy and like to thank you again the continue support to all the friends and family that keeping holding her on top of the good waves of life. Pictures click here..
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Was a beautiful beautiful full moon... Pictures click here..
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July 30.. Full moon....
...just out to take a picture of tonight moon, in this one, we wish for red cells, white cells and platelets... :)
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July 29.... 9 PM, Italian time... ...and Ja just go back to the clinic. That was the good news. Ja was home here in Rome from Saturday afternoon to Sunday evening. We really enjoy this precious time after 3 month in the isolation room. We have eat and laugh and was to short, but incredible emotional for the 4 of us. Hope this is the beginning of the way back to home.... We like to thank you to all the prayers and the full moon wishes about Ja been home for this moon, because she did it...
YEAAAAAHHHHH!! |
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July 28.. midnight Italian time... Today 34 and lucky us, tomorrow 33 degrees hot... in Rome feels like 55... Ja have a very special day, no many changes, neither ups and downs...nice. Saturday close for all of us very good, and we save the best news for tomorrow night...
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July 27... past midnight Italian time... Yesterday is over and Ja was feeling better than day before, what we can call a improvement in general. Still Ja don't have arrive yet to the self production of hemoglobin and platelets, and the white cells are not enough to start to fight all those bugs in her body. She have less fevers, and the meaning is that something working in her favor... We like to wish a good weekend to everyone... :) (Next full moon is on Monday 30)
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July 26... midnight Italian time One more day, another hot day in Rome, for Ja, the temperature in her room is perfect. The was not the best day, but is over. She have good meals today, and now is sleeping.. See what tomorrow give to all of us... Be ready for the weekend and the full moon.. :)
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July 25... past midnight Italian time Well, yesterday I (Pancho) follow sleep just when I start the updates, so I think,.. I do "mañana", and mañana was going to fast and here I'm now... Ja is dealing with few bacteria's, staff and herpes and fungus infections, all this is consequence of the lost of her immune system during the transplant. She receive allot of medications, and is hard to know witch one is working in her favor and witch one are not. What I meaning, is because everyone of those drugs have so many side effects that sometime can harm more than cure. The care at the clinic is very good, tests, controls, X Rays, etc, etc are happen everyday. Nurses and doctors are constantly helping Ja and trying to get her back home as soon is possible, but Ja still need to get over all this things first, and is not so easy. The progress is slow, we only can go day by day... and is a hard thing to do... :)
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July 24... before midnight Italian time
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July 23... past midnight Italian time Definitely hot in Rome... Ja is doing good. I don't have more news... News coming soon
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July 22... midnight Italian time... The weekend is over, and was a nice weekend we can said. Ups and downs with the fever, looks like Ja immune system is better, and her appetite too... :) The moon over the mountains start to look nice. I remember that I have few pics from the last full moon on June 29... Pictures click here..
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July 21... midnight Italian time... Week end in Rome... everything slow down in Italy, except Ja, she still active and better. That it... more news and pictures soon. To everyone, "have a nice week end"... :)
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July 20... yesterday updates... After reinstall my Windows XP and etc etc, it was to late for the updates, so sorry to everyone, no panic, is just my computer.. :) Ja is doing better, walking allot, eating more and the fever start to back up, but not disappear yet. The weather in Rome is hot hot hot... (37 degrees), and don't have rain for the last 45 days, the roses still growing and here are few pics from yesterday... Pictures click here..
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July 19... midnight Italian time... The progress from yesterday was back a little. From the morning Ja don't have feel so good, and was a very slow day to the last hours before going to sleep. We moving into Friday the 20, and I can guess we going to have another week-end at the Tor Vergata. In any situation and in any condition. Ja is beautiful...
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July 18... midnight Italian time... We all expend sometime with Ja today, also yesterday, talking and make jokes, and feel the progress on Ja. The number are in a balance period. Needs more days like today..:)
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July 17.. past midnight Italian time... Yesterday tarararararirara....tarara rara rira...(Beatles....:) Right, Ja progressing, eating good and look happy... The update for yesterday... tarararararirara....tarara rara rira...
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July 16.. past...past midnight Italian time... Updates delay... my computer run like Pancho.. :) :).... Ja still in the clinic, with good and bad periods. Because her immune system still low, bacteria's and virus love the environment and new problems arriving everyday to Ja. Still her number moving up and down, and in general Ja try very hard to overcome all this situation that even the doctors consider "never happens before", and trying very hard to find out what's going on... Nothing have work like on the originals protocol transplant program, but, even with all this adversities, we are confident that things going to get in the right direction. Always thank you to the online and non online supporters...
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July 15.. past midnight Italian time... Yesterday was ok. Ja is ok. Everything is ok... :) Any picture...a pizza box...
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July 14.. midnight Italian time... Again for Ja, one more day with all the up and downs of the journey. Ja has past the day ok. Craig bring some barbecue food and Ja really enjoy. We are ready on Sunday, waiting for the coming week and maybe the news about Ja going home... cross you fingers .. :)
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July 13.. past midnight Italian time... Ja have another nice and smooth day.
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July 12... past midnight Italian time... Again, yesterday was another regular day for Ja. We have dinner at "The Tor Vergata In", and sorry I forgot to tell yesterday that is how we call "Ja's isolation room", I guess some friends get the impression that we have eat at the Restaurant in the Hospital... Wish... Is ready Friday in Rome, and hope everyone have a good week-end.
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July 11...midnight Italian time... Day is over and we can said was a better day for Ja. We (Ja and I, Pancho ) we have dinner together at the "Tor Vergata In" on the 9 Floor, and was delicious... The view excellent, the menu enough good, we eat all the plates and I have cappuccino for after super... like I said a good day in general. Just receive a picture from last February at the Olimpo Dance school in Rome with friends of the hip hop group dancers. Here, Ja and Maria Rosaria. ( to see the video, look at February 17, 2007)
tutte le volte che penso a lei mi viene da sorridere....
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July 10... past midnight Italian time... I try to imagine my self, knowing Ja and be thousands of Kilometers apart, and like to know how Ja doing today, or yesterday, and I expect a good news, because a good news about Ja make my day maybe better, maybe different, maybe happier... Ok,... the news for yesterday, is no news..., so we know, the meaning of no news, is good news. Some of the test yesterday showing better results, still,.. the fever was coming and go for periods, and we are very happy that yesterday is over here in Italy...:) For change, a home made song.. to listen click here
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July 9... before midnight Italian time... Ja have a classic day we can said, she eat good and exercise, numbers going up, and she feel better and better everyday. Thank you everyone to write to us. Friends wrote: ------- We go on your website every morning and evening...We are walking along side you.... ------- Our thoughts and prayers are with you always... ------- At Church this morning we were reminded again to keep you in our prayers... ------- Love and muchos abrazos...
------- I miss all you guys, talk to you soon! -------
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July 8... past midnight Italian time... Ja is in more establish condition latest, with a great appetite and few walking around daily. If she keeping this pace, we going to have her back home soon... Grandma Joan left with us few pictures, like Anita and Rod. Is the same Rome, the same day, and of course, everything looks similar, but...different camera.. :) Pictures click here..
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July 7... past midnight Italian time... Saturday in Rome, super hot and everybody is out for summer. Ja is also out for a walk, out her room and inside the clinic, and sure make her feel very good. The scale of appreciations...:) . Ja still receiving a lots of medications, dealing with fevers and reactions. Overall she improves everyday and keep the faith. Ja's uncle Rod and wife Anita visited us in Rome last week, here are few pictures from them. The same Rome, different camera, angles and time... Pictures click here..
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July 6... before midnight Italian time... Today for Ja was like few of the latest days...
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July 5... midnight Italian time... Ja is doing better everyday. Today she decide to focus in a super healthy diet to get out all the bugs... :) Sound good...
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July 4... midnight Italian time... Before Ja going to sleep tonight, I ask if was any special to write for today...? and she mention, the mango was good... and the orange juice too... and she laugh. For the ones that know Ja, she start to feel very Ja. At the moment, Ja is very relaxing even if she still need to dealing with the fever two or three times a day, and with the increasing of cells in her body. The tip is that on four or five days the fever might stop.. another "hope" I guess...:) The picture for today...
Just finish to write the update, and look up, thinking if was something more to write, and my desk lamp make this design and the camera was in my desk, so...
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July 3... Afternoon Italian time... Ja's Grandma Joan left this morning back to Vancouver. Was nice to have her visit and we have pictures from her camera... (July 8) For the more important news, Ja's is feeling good, with some fever periods, but in general good. They have find some type of virus-fungus in the self bone marrow witch can be one of the factor of the fever. Is a original type of fungus that many of us we always carry, just for Ja is more strong at the moment. This one craves a very long period of medication to saddle down, and hope the work. In Italy is summer time and still hot. Everybody left on holydays, the city is full of tourists and if you ever can visit Rome... do it, is a place to follow in love with it...
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July 2nd.. Afternoon Italian time... With all the arriving and departs from Rome, I'm behind with the updates. The updates will come, the updates will come ...:):) Ja is doing good, little by little, she try to get back in shape and come home. Anita and uncle Rod flying back home today in the afternoon. They left with us few pictures from the trip... (July 7)
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July 1st.. Happy Birthday Canada, Ja's home land
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June is done.. Here are the last pictures for the rest of the full moon, looks a little mixed, because in between family and friends at home, and driving back and from to the clinic, I have the camera with me.... Thank you to everyone that have write, phone or visit us, help us to go trough few of the difficult moments of June. Ja and Craig, and Sal and Pancho Pictures coming soon.....
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Moon preview in Rome..28/06/07 12:30 AM Pictures click here
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June 30.. from last full moon on June 1st
Jessica
Late afternoon Italian time.... To the ones that wait for good news from Ja, I imagine that all of us, the readers and the writers we have been waiting for a good news... today Ja was out of her room walking inside the clinic for one and halve hour, nice work-out and a really good news... : Still more to come, soon we going to see the moon come out. To listen in the main time... Music click here Just now, arrive to our door Craig and Sue and their daughters Jess and Hanna, friends from Vancouver that last month the have a full moon party for Ja at their house with friends and family, and today we get together here in Rome for the second full moon in this month.
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June 29.. pass midnight Italian time Another day go by and Ja's numbers slowly climb up. She feel good all day, except couple of moments where she have fever and some reactions from platelets. Ja's appetite was good today. We are ready into the full moon day and feelings. We come back with pictures and more comments us soon we can. Thank you again to all the supporters, friends and family that still going with allot of faith towards Ja. We like to wish to everyone a happy full moon!
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June 28.. midnight Italian time And tomorrow Saturday, the Full Moon... looks like yesterday we have a full moon, thinking all around the globe we send to Ja the best of all together healing energy, a month has pass by, and we don't exactly know if the have work or not. I guess, Ja is better now that she was last moon, wonder... if really the help happens....? For yesterday, Ja feel better and better and enjoy the fruit season in Italy. Also Ja's uncle Rod and wife Anita, arrived in Rome to visit us, this full moon going to be very family oriented..:) Another day tomorrow, but is another full moon day, and for this one we hope that the next full moon, Ja watch from the roof of our house... :)
The same rose, day older...
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June 27.. after midnight Italian time...
The same rose from yesterday... the same Ja from yesterday, just a day older... :)
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June 26... before midnight Italian time... Today, 30 degrees hot in Rome!!.. everyone was out with a sweater today....almost ...:) Ja have again a calm day with few moments where the fever climb up, after the medication the fever come down, and in between, she have time for smoothie, a good diner and a movie... I know everything sound good, but still the fever don't walk away. Constantly at the clinic, they perform all type of checking and rechecking of Ja's condition, and even if they find that everything is ok, in this type of transplant, the source of the fever is 50% know and 50% unknown. The first they need is White cells count up to fight any infection, second the production of red cells from the bone marrow, and then the platelets to start a normal functionality of the whole body. Ja is going in this direction, just is a slow process. She feel good overall everything and confident, and we are confident in Ja's life force.
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June 25... midnight Italian time... Today, 40 degrees hot in Rome.. that's hot! Ja's gone up in everything on count number, good!! also eating, drinking, eat more fruits, fever,...all the usual... :) Tomorrow... looks interesting....:)
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June 24... before midnight Italian time... Today, everything drops down on Ja, white cells, red cells and platelet. She still feeling ok, and keep going with the everyday therapy. Here, some info that can help you to see the picture better... In this micro-photo of blood cells, platelets are stained purple. A T-Lymphocyte white cell is stained green, and a Monocyte white cell is stained gold. Red blood cells are red.
hemoglobin
red blood cells
white blood cells
platelets
bone marrow
All this information come from this site Created exclusively for Phoenix5
Ok, is me again.... What you like to know now is the number... Approximately in a person: Normal Red cells counts are 125 to 135 Normal White Cells counts are 6000 to 9000 Normal Platelets counts are 40.000 to 70.000
About Ja, she don't have rich this point yet, but we let you know when the happens... :)
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June 23... pass midnight Italian time... Never be to confident in this process... The fever is back, more infections on their way and more antibiotics and more of everything. Still, Ja feel better and eat better and more everyday. Like after a fast, any fast, first slowly and progressive to eat everything. Ja is at the stage where she feel to eat everything... of course, can't eat everything yet... :) The hope still open... I just realized that Ja start to have fever on May 18, that meaning for the last 35 days she have been fighting all type of fever's...
Lines for Ja... OUCH......such stamina is needed for this healing process---a long hard month HEY??????and no doubt it's really been her lifetime to some degree or other. ------- We are all so touched and grateful to have this experience of sharing the love and support that is for Ja. ------- Hello Ja: I know your Grandmother is there now, hope she is going to be able to see you
Ja's energy cannot be
repressed: if she feels dancing so let it be....
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June 22... midnight Italian time... So far, another good day for Ja. The fever has gone for more than 24 hours...? "hope" that is the break she needed to start the next stage....out the box. Ja's Grandma, Joan ( for the people that know her) she has arrive today in Rome to visit Ja and us. And about the roses, I never have show you the size of the rose trees, here is one picture and I'm 178 cm Pictures click here
Lines for Ja... Don't be afraid to try something new.
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June21... pass midnight... Done!. Ja feel better, the fever is mild enough that Ja's own system start to bring down. Sound good eh? Ja's appetite is improving, good symptom. After so many days of fever, some peace sometime can be very appreciate.. :):)
Lines for Ja... Happy Solstice, Sunshine & Soulshine ------- Sigo muy conectada con JA en mis pensamientos...solo trato de concentrarme en ella desde la bondad, buenos sentimientos, alegria, que todo eso se expanda en ella como las olas en el mar... ------- I “HOPE” the treasure at the end of your rainbow is the cure we’ve all been “ hoping” and praying for ------- We are happy to hear Ja had a better day….keep the faith…every day will be better…stay strong and believe…. ------- May this day be a turn around for you and every moment bring you more strength and healing.
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June20... almost midnight... Another day with a little bit of everything, in general everything looks better and promising. Ja get to eat the first Italian fig, water melon and berry smoothie, what a fest. Exercise as well, very gentile of course. I guess the "hope" still going for the next day. :) I cached a rainbow in the garden..
Pass midnight Italian time... Somebody cross street from us, had fireworks for 45 minutes. Enjoyable, even if is Wednesday night pass midnight. I get few pictures just by the end... Pictures click here
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June 19... almost midnight... Well Ja have a better day, all the hope's from yesterday make us hope again for a better new day full of hope for Ja get it better.... I know the are to many hope's in my writing and is because "hope" never ends... :) The flowers from yesterday... Pictures click here
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June 18... Monday done... Yesterday, Ja get a surgery to put back the central line tubing attach to the main artery. The rest of the day was not so easy after anesthetics, she have pain and because the surgery she don't have the daily medications, the fever come back, and sure was a hard day for her. Is also hard for me to inform all of you that she don't have any easy time. Hope that tonight she can have a good sleep, and hope that tomorrow is another day of hope for Ja, and hope Ja feel better...
The sunset today... Pictures click here
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June 17... Sunday almost done (Italian time) Hope everyone get the idea of the translator. Is not our page, so don't click nothing alls, just translate... :)
Ja's white cell still growing in number and variations, what meaning more affectivity in fight against the infection, and they do. Ja today feel much better. Have few minutes for more roses.. Pictures click here
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June 16 Ja, un poco mejor. Todo bien....tengo problemas con mi computer
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June 15... ( to the early birds ...:) Finally the identify a virus in Ja's lungs....New therapy is on the way. The midnight update... Yesterday the white cells counts has going up by the evening. Ja have a very similar day that day before, the fever was anticipate more this time so the day in general more under control. Enjoy this power point slide that friends of Ja send from Vancouver. "The logistics" click here
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June 14... ( pass midnight Italian time...) Ok, "Yesterday".. Right, back to Ja's yesterday... Well, soon every specialist in the hospital has check Ja, to be sure she doing good and try to find where this never end fever coming from, because so far, the fever still there and for Ja start to be not so fun...exhausting. Still, in between all this, the numbers going up, and Ja's own bone marrow is growing back. On two week another bone marrow test going to give us the final result, meaning... if the transplant has work or not.
Lines for Ja... Just know that although you can’t see us, we are right beside you always. ------- The amount of emotion that I have invested in your recovery makes me realize how close you still are to my heart -------
We love you, we miss you, and we can't wait to throw a party for you upon
your ------- MUA!!!!!!! -------
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June 13... ( midnight Italian time...) Today, the focus is again on yesterday.. And Ja did it good, except the moments where the fever was up. Overall, the number with some small variations still going plus... Today we expect more results from yesterday tests.... hope for the best
Lines for Ja... I just wanted to let you know that during the full moon last Friday I put on the most inspirational song I could think of and danced for you! ------- Mandale un beso enooorme de nuestra parte y que estamos rezando a conciencia para que se reponga pronto... ------- What a great team around you! I feel like hugging all of you at the same time in one embrace. ------- Amazing how our children can often be stronger than us at times…we are so happy with your good news ------- This website is the first one I read every morning and the tension has been enormous! -------
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June 12 ... Morning Italian time, the dawn Rome on pictures at 5:36 AM Pictures click here
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June 12... ( pass midnight Italian time...) New color in The Rome Update, we moving into another feeling....J Yesterday, was a surprising day because all the number in Ja's cellules counts going up. This meaning that we have hope again, something is growing in Ja physically, ready her spiritual side has developed allot between before the transplant and now J The fever still there.. but is also a omen that a bone marrow start to take place in the body. The graft for bone marrow is around 20 days, today is day 14 and ready some symptoms. Well is not for start to jump around, is more to be meditative and thinking uuhmmm...?
Lines for Ja... I'm ten years old. Your story touched my heart. My mother e-mail was telling Ja to breath in positive energy and breath out negative energy. Well I think that a good sleep always helps when I'm not feeling well so what I recommend is to close your eyes, rest you head and say to yourself "I will be better tomorrow" and continue to do this until you are better. Hopefully this will help and although we have never met I'm hoping that some day we will. You've inspired many people. P.S. will pray for Ja every night. ------- I am just sending love, always thinking of you ------- Enjoy your roses and your garden. Aren’t we blessed to live in such a beautiful world. ------- Scrolling through your journey is humbling to say the least. Your love, your courage, your strength, the support around all of you...is only inspiring. Wishing you only healing days ahead. ------- We are so happy with your good news…I’m sure it is a positive sign that things are going to keep improving ------- I hope you will soon be able to fly like the beautiful butterfly on your website, free from your hospital room that is your cocoon.
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June 11... ( midnight Italian time...) Hi to the Rome Update readers. Midnight is a good time to update the web, so we can talk about yesterday in full..:) And yesterday was a full day again for Ja. The Doctor removed Ja's Central Line; is a small tube attach to a principal artery close to the heart, they use to give the medication and transfusions. They did it because the persistent fever Ja have for few days. The fever still there, but if the line was the cause, the infection must stop in the next 24 hours. So far Ja feel better, eating and her lung infection looks like is almost cure. So far yesterday, was another busy day for Ja.
Lines for Ja... Give thanks for the moment, and pray that another will yet follow. ------- Our garden is filled with Rose bushes. Rose is the queen of flowers and a powerful healer. May the Deva of our roses here on the west coast blend with yours in Roma. ------- Love and hope for brighter days ahead...for the healing of the lovely and beautiful Ja. -------
As I have
watched you grow, I have seen you turn into a fine person and a beautiful
young woman.
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