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2007: August / July / June / May / April / March / February / January / 2006: December / November / October / All months together |
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JA!
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The view from Ja's window +from inside Pictures click here and from the field click here
Hey lady in the box! -We love you! We just visited your site and saw the pix from the field! so wonderful! Just wanted to let you know that we are out there in the field too!! We have been praying and cheering for you often. Jonathan, Gabriela, Jake, and Sofia |
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hey just thinking about all of you sal pancho ja and the crew , as usual.. and wanted to say first of all i'm loving the daily updates i read it every day with panchos accent.. he he... Michelle
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This is Tsonoqkaw. She is the wild woman of the woods
The prayful dance energy of the Wild Woman of the Woods being released to You, dear Ja, and to all your beloved ones. Ed
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May 31... "DAY 21" ( late afternoon Italian time....) When I start to update day by day, was plan to update to the day plus 21, (today), because, today was plan for the doctors in the transplant protocol, to make the first test of bone marrow. Everything was anticipate because the fever, and by now, we don't really know what happens. So I guess, I need to keep the updates to the day we know for sure the result. Ja is very positive and now everything is focus into get her back into her dancing feet and healthy. I think that few more days in the same direction will do the work... :) The tests and numbers going up, the immune system increasing and start to reach the lowest level of safety body. and we all are here with the Go Ja GO!! GO Ja Go.... Lines for Ja... Ja is such a strong person and was so well prepared to go through this ordeal - I know that she can draw on all of that inner strength to get her through this. ------- Quien esté alla arriba, que se ponga las pilas! ------- Precious Ja, We wrap you in a blanket of love. May the rest of your healing journey be easy and smooth. -------
Just to let you know that MANY in Springfield, IL and
Park Ridge, IL are ------- Just sit tight, bite the bullet, and "good omens" will come! ------- Ja ,I see You coming through this in a rainbow of Light ........
i hear Sal's voice
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May 30... "DAY 20" ( late afternoon Italian time....) So far, everyday is a hard day for Ja. This morning, under anesthetic she have a surgery to reinstall the central line that was previously remove a cause of the infection, this is the line from where she receive the medication and transfusions. Everything was good, and now she is in her room slowly get it back in shape. Ja's own bone marrow that was transfused back to her on Monday, don't have start to show signs yet, but the white cell counts have increasing enough to start to bring down the infection, as well the water retention start to release. Craig and Sal, both amazing, doing an incredible job taking care of Ja on the 12 hours shift each one, comforting, helping, and keep and eye on the machines in the room that provide to Ja support. Lines for Ja... love from the "prayer team" in Vancouver , sending love love love... Ja, just know we are all thinking of you all the time. ------- The strength and love of life that you all have is being shared around the globe. And has gone around many times and is made its way back to you. This will give you the power to be . ------- Bueno, seguimos haciendo fuerza....decile a JA que somos varios los que la hemos elegido como nuestra "hija adoptiva". ------- Ja. La vida es un sueño...that is worth to be lived and understood.
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May 29... "DAY 19" ( morning Italian time....) Everybody on duty...
Evening... ( Italian time ) Ja is Ok today. Ok is like the fever is very low, and in general more calm. Yesterday, around 4 pm, the Doctors team had decide to transfuse back to Ja her own bone marrow, because at the stage she was without any immune system, and impossible to stop the infection and fever. A little of the history: On Friday 25, the test of bone-marrow from Ja, has showing that was 100% from Sal. On Monday 28, after the 2 days with fever and infection, Sal's bone marrow was down to 40%. Today, the critical situation is under control, and we wait for Ja's own bone marrow to grow back and help against the infection. (approximately takes 48 hours) Considering few factors, Ja's immune system was in "0"(cero), and today she still in "0" (cero). She still receiving the same support medication, blood, platelets, plasma and more, and we don't know yet how the two bone marrows going to react, like accept or reject. Is to early to diagnosis or have numbers to tell what is going on, but we know by now that Ja is Ok and relax, and the doctors too... Hope everybody understand why I wrote this morning: "Everybody on duty" (the picture with the child and the dog praying was send by Val from Seattle)
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May 28... "DAY 18" ( morning Italian time....) Monday news: Still early for test results, also after the week-end, takes sometime to doctors and nurses to settle down in their routines, but so far everyone was visiting Ja, and taken all the morning test and proves, soon we going to know more about Jas condition in general. We know that she do retain liquids, and the infection still there, not so hard like last week. For news, is not so bad news...:):) Thank you again for all the e-mails and prayers in support that arrived from everywhere to us. We consider this a good omen too.
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May 27... "DAY 17" ( morning Italian time....) Sunday news: Jas condition improves everyday. New inputs in the diet and gentile dance moves helps physically and mentally. The healing process can't be accelerate, but Ja going to try anyway. (Pass midnight Italian time...) At this point, the city and most of Rome is calm. So was Jas room last time we talk, 10 pm. But the afternoon was again very busy between the fever and medication, nurses and doctors in and out, looks like for Ja to take a "siesta" is almost impossible during the day, and also in the night, because all the medicines she take a different hours. Sometime the same happens with the food. Some medications must be taken with food, others far apart. Plasma and Platelet can't wait, so if platelet or plasma are transfusing and the lunch or dinner arrive, Ja can't eat, and when they finish the transfusion, the food is cold... In this week, we expect some news and changes, but so far, still a long way to go. From today, the same flowers., just a little older...:) Pictures click here
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May 26... "DAY 16" ( Early morning Italian time....) Saturday news: Last night and now Ja has some fever. She still receiving platelets, plasma, blood transfusion and medication, those are the mainly cause of the fever, and for few hours is necessary to keep down applying ice bags on Ja. This can be done thank you to Sal's love and stamina. She is the one by Ja's bed doing the work patiently. Love you Mom too!! (Pass midnight Italian time...) A nice history for the end of the day. Ja doing better, walking and exercise breathing, and I, (Pancho) looking for a good "omen", in the green field outside the clinic, I find this one among thousands of clovers... ...
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May 25... "DAY 15" ( morning Italian time....) We are once again in the waiting time... Just now ( 10 am) the doctors are in the process of extracting some bone-marrow samples to find out what is going on inside of Ja's body... I guess we like to know too. Update 11 am: Sal call, the extraction is done, we going to know the results by Monday. shuuuu...(air out) call for a break... Noon to evening... Written by Craig: I just left the hospital after having a great visit with Ja. She was up out of bed talking, laughing, and eating... what a rollercoaster day.. :):)
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May 24... "DAY 14" Back on track, day 14 was another one of those long days. Ups and down, a lot of tests for Ja, back pain, fever, and then few long periods with nothing, very relaxed and listen to music... This is all part of the process Ja said, and counts the days too. "The flowers from today".. Pictures click here
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May 23... "DAY 13" ( noon Italian time....) Ja has improved a lot from yesterday, "a lot" meaning: better... :) but still recuperating. (Pancho) I was driving this morning in rush hour, feeling like people feel in rush hour, especially when you drive some friends to the train station and you don't think you are going to make it in time. There was a scooter in front of us and the driver had this logo written on his T-shirt...
this really changed my day...hope that it changes yours too :) Ja have a print of the happy people in her room, and start to kick in...:)
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May 22... "DAY 12" ( morning Italian time....) The fever in Ja persists. For some good news, this is not a good one. Hope during today it can be under control. The fever is not the best for the whole system, and like any cold or fever, the body can learn to fight to get back in shape, but it always takes a few days for this to happen...and for us, this waiting time feels like an eternity... Again, thank you to everyone for the steady support and prayers... Ja is very happy to know that you all are there somewhere... Early Afternoon... The team of Doctors from the clinic has traced the cause of the fever in Ja, they make some changes in her medication therapy and protocol, and Ja starts to feel a little better. Keep your fingers crossed, the high-tech medicines help a lot... :)
Evening... ( Italian time ) Was a long day... In the middle of the afternoon, Ja was taken into surgery to remove her central line which was infected and had been the cause of most of the fever and head ache problems, after that, it was like the whole world changed orbit (mentioned Sal...) Also she started another anti-anti-anti like anti some something, that helped a lot. By now, maybe she is sleeping and hopefully very relaxed. It is so nice to hear, (she mentioned after) that prayers have arrived to Rome at some moment, because she feels it. Sal was with Ja all the time and we; Craig, Ves and me, ( Pancho ), concentrate in the garden arrangement during the waiting time, and after Ja was back at her room, the whole house mellowed down... feels very good See you tomorrow... hugs to every reader and reader's friends...
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May 21... "DAY 11" ( morning Italian time....) The fever is moving up and down, and because Ja's immune system still very low, it this not so easy to get it better overnight. Just now in Crescent Beach, people dance and party for Ja, and we are waiting for the healing wave from the dance to arrive in Rome any minute ...Thank you guys! Update: We received the first call ( 2 AM in Vancouver) from Sal's mom Joan, about the dance, "beautiful, magic, amazing..."... the wave is here :) Harriet send us the moment in these Pictures click here ------- From our garden today.... Pictures click here
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May 20... "DAY 10" (morning Italian time....) Ja's fever break down and start to feel better. Afternoon... Ja's fever come back... The family left today direction Naples, and before they departed, they drove to the field at the clinic and waved to Ja, and Ja waved from her window, what a beautiful moment. Pictures click here
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* Also tonight in Canada * Dance Benefit for Ja at Camp Alexandra in Crescent Beach * Live music with 3 bands: O'Hara Lane, MURP!, and In Harmony All Stars. * May 20 - 8 PM - Entree by Donation - Silent Auction. Don't miss it, it sure to be a fun dance. |
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May 19... "DAY 9" Day nine, Ja's fever still there. She is receiving what she needs, like platelets, antibiotics and other medications to preventing complications. From the doctor and nurses, everything looks ok, the fever is part of the post-transplant, almost inevitable because the suppressed immune system. (Pass midnight Italian time...) Craig stayed with Ja for the day and we, Pancho, Sal, Florencia, Soledad, Raul and Coca have visited the famous Sistine Chapel for first time, amazing!... like most places in Rome.. Pictures are in May 18, next below...
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May 18... "DAY 8" (noon Italian time...) The calm before the storm...Ja wake up with fever today, not so much, but together with a little headache didn't make such a good day. What really made a difference for today, was the arrival in Rome of Pancho's nieces, Maria Florencia and Maria Soledad, together with their father Raul and aunt Coca. This was a big surprise as they came from Argentina, and is one very special-special time for all of us. The last time we have been together, was 7 years ago in Argentina. Now in Rome. Can't describe the feeling with words. (Pass midnight Italian time...) We just finish our gig at El Tremendo, Spanish restaurant in Rome, together with Rickey Man on accordion. Jim and Helga also played few tunes on accordion and violin. Pictures click here Pancho's family was at the restaurant, and also Lana, Rickey's wife. So we have a historical music and family night in Rome. Pictures click here from Family, friends and music..
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May 17... "DAY 7" (past midnight Italian time...) Day 7 was the most relaxed day Ja have from the time before and after the transplant. She was painting, playing drum, listening to music, writing lyrics for an original song from her and Craig, talked on the phone with friends from Vancouver and Rome, and finally she mentioned that the day was too short to do everything she would like to do. Ja still very Ja Jim and Helga arrived in Rome today, musicians friends from Vancouver via Germany, and Rickey Man and Lana via London. Tomorrow night, we, Pancho, Sal and them are going to play at a Spanish Restaurant El Tremendo in the Vatican area. Pictures click here and keep tuning in with Rome Update.. :)
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May 16... "DAY 6" (midnight Italian time...) Day 6 is over. Yeah!! Day by day is definitely our reality. Ja doing good. The recuperation is on the way. Today we give to Ja a Darbuka, a hand drum percussion from Egypt. In a few more days we bring the Bass amp, Bass, accordion and guitar also....We like to see how much the nurses and doctors can handle.. :):)
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May 15... "DAY 5" (evening Italian time....) Day 5 is almost over and nothing major. Ja's hair is starting to fall out which is a natural consequence of chemotherapy. Her counts continue to drop but we are sure there are lots of new cells growing. Craig and Ja have been watching lots of nature programs, making music together and being very creative.
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May 14... "DAY 4" (morning Italian time....) Another night for Ja in the count plus days and she had a nice sleep. Count plus days, count minus cells, platelets and everything. Ja's immune system is still going down and being suppressed in order to let Sal's bone marrow settle down and start to grow. Sounds complicated but not for the team of doctors at the clinic that say everything looks and is working according to program. We just received an e-mail about a new fund-raiser for Ja on the 20th of May in Crescent Beach, White Rock area in B.C., Canada. It is a beautiful festival with a craft market during the day and a dance benefit for Ja in the night. The information from The "NOW" News paper from Surrey and Pictures click here
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May 13... "DAY 3" MOTHERS DAY..... Ja in the count plus days feel better and better, well nothing like she can jump out the bed and start to dance... :), but enough to make a handcrafted bracelet for Sal on mother's day and to watch some movies. She mentioned, it is kind of like a dance audition, first you make all these rehearsals and preparations, then you do the presentation, and then, you must wait...
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May 12... "DAY 2" (morning Italian time....) Second night for Ja in the count plus days, and she feels good. But, this is the start of another phase of the transplant program. Her immune system is still going down for few more days. Now, she is taking preventive medicines, antibiotics, anti-acids and food supplements. - - - - - - - - - Evening Italian time... Ja had a very nice time for the rest of the day, and she called me ( Pancho ) to tell you that I can say, that she feels good but not perfectly good and is very happy to be finished with chemo. One of the rules of the clinic during the transplant process, is that one of us has to be with Ja all the time. Hugs to everyone... and "Happy Mothers Day" ( for tomorrow the 13 )
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May 11... "DAY 1" (morning Italian time....) Ja had her first night with the new bone marrow and had a good sleep. Now we count plus 1, 2, 3..etc etc to day 20, to know if the new bone marrow is accepted by Ja's body, and then we count the days to be healthy enough to leave the isolation room... We would like to thank everyone that has sent e-mails and called in support, and has been sharing this magic moment with us.
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May 10... "DAY 0" (afternoon Italian time....) The transplant was done!! Yujuuuuuu!! Ja was in perfect condition, the infusion of the bone marrow and stem cells started at 12:36 PM, in a sequence of 8 bags, and was finished at 14:45... Fantastic!! Doctors and nurses are very happy with the results, everything went nice and smooth. A good friend wrote to us... "The bone marrow is being bathed by Golden Light" We are all very happy. From today in the field... Pictures click here
Written by Sal When Pancho and the boys called Ja and I and told us to look out the window, it was beautiful! Ja stood on a chair in her room and cracked a huge smile as she saw her guys out there. So then we wrote our message on the window with medical tape back to them. The room was filled with love, we had music on and it felt very special. After all the marrow was infused, the nurse unhooked some her medications so that Ja could walk to the window and waved to the boys. They jumped up and down and ran circles around the heart and it was truly a celebration. They had placed a basket of fruit in the middle of the heart in honor of Ja and had a mini feast. We were filled with emotion and were so happy to be altogether. and from inside ja's room Pictures click here
May 10... "DAY 0" Today, around 1 pm Italian time, is the day when the bone marrow from Sal, is going to be transfused into Ja. The point most important has arrived... Sal will be with Ja inside the room, (imagine from inside of the window..) and we, ( Pancho, Craig and Ves) are going to sit outside in the green field, the closest we can, waiting, relaxing, celebrating, and anybody can join us outside in the field.. if you look through Ja's window. This is an incredible moment, I feel a very strong energy about everything when I write now, ( it is 4 AM on May 10, Italian time). ( Pancho) GOOD LUCK JA ... WE ALL LOV' U
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May 9... "DAY ONE"
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May 8... "DAY TWO" The good news for today is... that today is the last day of chemo for Ja. Tomorrow she has only some medications and Thursday the 10th is the day when they transfuse the bone marrow and stem cells... Keep your fingers +... (News at 11 AM... Italian time :))
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May 7... "DAY THREE" Everything looks good and close to "Day 0", Ja has 3 more days of chemo and then the transplant is on May 10. Then it takes at least 20 days to know if the new marrow is growing, the room is filled with lights and is vibrating of Ja's energy. And today is sunny.. Pictures click here (News at 11 AM...:))
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May 6... "DAY FOUR" Good day for Ja!! yahhhh.. And today rain.. Pictures click here
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May 5... "DAY FIVE" Day 5 still going, with a happy and very relaxed Ja. New chemo and more changes, but so far...so good.. ( News at 3 PM Italian time on Saturday May 5..:))
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May 4... "DAY SIX" Day 6, was one of those calm days. Ja had a few tests and everything looks good. fiuuuw..... We are already on day 5....
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May 3... "DAY SEVEN" Day 7, was one of those hard days. The medication was strong for Ja. She had headaches again and discomfort for most of the day. She started to feel better by the evening. This whole thing is not a joke. Time is going fast but slow at the same time. We sterilize anything and everything in a bath of alcohol and put it all in sealed bags before entering the room. Between us, (Craig, Sal, Pancho) we do 7 or 12 or 16 hours in Ja's room with Ja, helping and sharing time together, listening to music, watching TV, reading some books. Sometimes we look out the window at the mountains and enjoy the beauty of the scenery and the big open field. We are already on day 6.... ( News at 3 Am Italian time on Friday May 4..:))
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May 2nd... "DAY EIGHT" Today Ja is doing good and her body is adjusting to the chemo ok. Her diet is pretty much restricted to rice, chicken, mashed potatoes, dried toast, black tea and not much else. (News at 11 AM...:)) The rest of the day was calm, relaxing and listened to some music. By now she feels good and happy.( News at 10 PM...:)) ( Day 9 passed very calm )
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May 1st... "DAY NINE" Day 10 is over, yippy!!! Ready inside Day 9. It is a beautiful day and Ja feels great... Rain in the afternoon, but Ja still feels good. In Italy May 1st is a big happening, a national holiday with picnics, concerts, markets and festivals everywhere... pity the rain stopped some of the events, but not indoors, Italy is feasting and partying... :)
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Once upon a time.... Rome
was Always nice to see the old Rome Pictures click here |
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Visitors to this page can see that the energy of Ja has followed us all the way to Rome, as new friends join us in the spiritual and economical crusade. If you write to us, or have any questions, we will answer you personally ( e-mail ) Note: if you have already visited this page, scroll again as we add new material all the time, and for the latest event, Ja's Fundraiser
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Browse by month
2007: August / July / June / May / April / March / February / January / 2006: December / November / October / All months together |
| Home / Thalassemia / About Ja / Fund-Raisers / Events / Guestbook / Donations / Videos / Gallery / Press Review / Translator / E-Mail |
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